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home cores samples publications trials fpi the genetic frontotemporal dementia initiative (genfi) is a group of research centres across europe and canada with expertise in familial ftd, and is co-ordinated by dr jonathan rohrer at university college london. the aim of the study is to understand more about genetic ftd, particularly in those who have mutations in the progranulin (grn), microtubule-associated protein tau (mapt) and chromosome 9 open reading frame 72 (c9orf72) genes. there are now promising avenues for treatment of these disorders but we still do not know when drugs should be started or how we should measure the response to treatment. genfi investigates both people who have developed symptoms and also people who have a risk of developing symptoms in the future because they carry an abnormal genetic mutation. by studying these individuals who are destined to develop the disease later in life we can understand the development from the very earliest changes. the key objectives of genfi are therefore to develop markers which help identify the disease at its earliest stage as well as markers that allow the progression of the disease to be tracked. the eventual aim will be to use these markers in future clinical trials of drugs in genetic ftd. the genfi consortium currently consists of sites across the uk, netherlands, belgium, france, spain, portugal, italy, germany, sweden and canada. site lead researcher university of toronto dr mario masellis university of western ontario dr elizabeth finger université laval, québec dr robert laforce mcgill university, montréal dr simon ducharme karolinksa institutet, stockholm professor caroline graff university college london dr jonathan rohrer university of cambridge dr james rowe university of manchester dr alex gerhard university of oxford dr chris butler erasmus medical centre, rotterdam professor john van swieten universität ulm professor markus otto ludwig-maximilians-universität münchen dr johannes levin universität tübingen dr matthis synofzik icm paris professor alexis brice centre hospitalier universitaire de rouen dr olivier martinaud centre hospitalier régional universitaire de lille dr florence pasquier uz leuven dr rik vandenberghe università degli studi di milano dr daniela galimberti istituto carlo besta milano professor fabrizio tagliavini università degli studi di brescia dr barbara borroni irccs fatebenefratelli, brescia professor giovanni frisoni università degli studi di firenze professor sandro sorbi hospital clinic, barcelona dr raquel sanchez-valle hospital universitario donostia, san sebastian dr fermin moreno universidade de lisboa professor alexandre mendonça universidade de coimbra dr isabel santana if you are interested in becoming a genfi site please contact the genfi study management committee at [email protected] .

URL analysis for genfi.org.uk

http://genfi.org.uk/samples.html
http://genfi.org.uk/trials.html
http://genfi.org.uk/fpi.html
http://genfi.org.uk/cores.html
http://genfi.org.uk/publications.html
bbmh.manchester.ac.uk
clneuro.ox.ac.uk
neuroscience.cam.ac.uk
ucl.ac.uk

Whois Information

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Domain name:
genfi.org.uk

Data validation:
Nominet was able to match the registrant's name and address against a 3rd party data source on 19-Jul-2013

Registrar:
1 & 1 Internet SE [Tag = 1AND1]
URL: https://www.1and1.co.uk

Relevant dates:
Registered on: 07-Feb-2012
Expiry date: 07-Feb-2020
Last updated: 06-Feb-2018

Registration status:
Registered until expiry date.

Name servers:
ns-10.awsdns-01.com
ns-1192.awsdns-21.org
ns-2018.awsdns-60.co.uk 205.251.199.226
ns-847.awsdns-41.net

WHOIS lookup made at 14:01:00 11-Jul-2018

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  REFERRER http://www.nominet.org.uk

  REGISTRAR Nominet UK

SERVERS

  SERVER uk.whois-servers.net

  ARGS genfi.org.uk

  PORT 43

  TYPE domain

DOMAIN

SPONSOR
1 & 1 Internet SE [Tag = 1AND1]
URL: https://www.1and1.co.uk
Relevant dates:

  CREATED 07-Feb-2012

  CHANGED 06-Feb-2018

STATUS
Registered until expiry date.

NSERVER

  NS-10.AWSDNS-01.COM 205.251.192.10

  NS-1192.AWSDNS-21.ORG 205.251.196.168

  NS-2018.AWSDNS-60.CO.UK 205.251.199.226

  NS-847.AWSDNS-41.NET 205.251.195.79

  NAME genfi.org.uk

DISCLAIMER
This WHOIS information is provided for free by Nominet UK the central registry
for .uk domain names. This information and the .uk WHOIS are:
Copyright Nominet UK 1996 - 2018.
You may not access the .uk WHOIS or use any data from it except as permitted
by the terms of use available in full at https://www.nominet.uk/whoisterms,
which includes restrictions on: (A) use of the data for advertising, or its
repackaging, recompilation, redistribution or reuse (B) obscuring, removing
or hiding any or all of this notice and (C) exceeding query rate or volume
limits. The data is provided on an 'as-is' basis and may lag behind the
register. Access may be withdrawn or restricted at any time.

  REGISTERED no

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